|
I AM VERY HONORED TO HAVE RECEIVED THESE AWARDS
Please click on the awards and learn about who gives them and others who have received them. You will read some heart warming stories.
WE ALL HAVE CROSSES TO BEAR
Thank you for visiting my site. I worked very hard to
get it just right, plus this is my first site. The
main reason was to get you to read it, for the
information may save your life. Please allow time to
load, read it, enjoy the graphics, and sign my guestbook
on your way out. God Bless.
There is a support group of people who have Hemochromatosis, or someone in their family has it. Join the group for support and information. Click below to subscribe to FHHF.
Click to subscribe to FHHF
YOU ARE VISITOR
HEMOCHROMATOSIS
Are You Dying
From Too Much Iron?
Never heard of this disease, HEMOCHROMATOSIS?
Neither had I until I was diagnosed with it. It's not
a pretty disease if not caught in time. As a matter
of fact, it's a KILLER. It's assumed now that my father
died, at the age of 68, from it, but the death certificate
says he died from myocardial infarction. A heart attack.
Well, HEMOCHROMATOSIS probably caused it
according to the doctors.
This disease is also known as IRON OVERLOAD. That
means we have too much iron in our bodies and can't get
rid of it. There is help tho, if caught in time before
any organ damage is done. Phlebotomies, (blood letting),
like giving blood at the blood bank. So simple, but,
first they have to diagnose you with the disease.
That's the hard part, because no one is looking for the
disease. It is a hereditary disease. If one shows
up with it, all members of the family need to be checked
for it.
My son has it, and I have it. My son, who is 34, stands
a chance of living out a normal life with treatment.
I have a lot of organ damage and congestive heart failure,
arthritis, body pain that is unbelievable. I use a
cane, walker and a wheelchair. I am a diabetic, brought
on by the Hemochromatosis, who takes over 185 units of
insulin a day, plus three insulin pills a day, plus 22
other pills a day. Shots and pills, that is my life.
I am 55 years old, disabled and given, hopefully, until
I'm 60 to live. Don't feel sorry for me. I have
probably saved some lives by getting them to have their
doctors check them for the disease. I'll be happy if I
save more. Please check out the links and learn about
this disease. You may have it and not even know it. You
may be tired all the time, have arthritis, stomach
problems, high liver profiles on your blood tests, heart
problems, problems that doctors can find no reason for,
or your tests all come back normal. Severe Vertigo,
bowel problems, colon problems, pain in the upper right
abdomen, in your liver area.
There are a lot more problems you could be having, check
the links.
My goal now is to spread the word as fast as I can
about this disease...Remember it's name..
"HEMOCHROMATOSIS".
"Hemo" is blood..."Chroma" is color and "Tosis" is
disease. If you think about it, iron rusts when left
out in the weather. Basically that's what happens to
the organs that have too much iron. Autopsies done on
those with this disease show that the organs have a
brown tone to them. This is not a blood disease,
but a metabolism disease. The liver is one of the main
affected areas. Untreated, you can develope cirrhosis
of the liver.
Let's save lives...Spread the word about
HEMOCHROMATOSIS.
MORE IMPORTANT - HAVE YOUR DOCTOR
RUN THE FOLLOWING TESTS ON YOU:
TIBC - SERUM FERRITIN -
AND SATURATION PERCENTAGE.
IT COULD SAVE YOUR LIFE
OR THE LIFE OF
SOMEONE YOU LOVE
January 2000
I thought I would catch you up on what is going on with me
in a new century. I will be 57 this year, in July,
but I wish it were good news about me, but I am happy
just being alive to see this year of 2000 come in.
I now have hypothyroidism, which is very common with HH'ers.
Walking is almost impossible. If we go out, I use a
wheelchair and at home I use a walker with wheels.
I also have fibromyalgia, chronic fatigue syndrome, and
as of yesterday was diagnoised with Squamous Cell Carcinoma,
which can spread from skin to mucous membranes if not watched
and treated....To go further I now have osteoporosis...I
would like to remind all of you to have the tests done.
Don't end up like me, and some of my HH friends. Make
your doctor do the tests...It's your right...Don't die like
some already have, and some who are going to....My Love and
Prayers go out to all of you, because I want you to live
out a normal life span that God meant you to.....
It is now August 27, 2000, and the year is almost over...I have made it this far, but not without new problems and disease diagnosis'.....I have now been diagnoised with NASH (Non-alcoholic Steatohepatitis)....Also a liver disease....It is a hard disease to explain, as they just came up with information about the disease in 1980....Steato means fatty and most people have some sort of fatty liver, which in itself is not a disease...But when it has started to turn fibrois, that is not a good sign because it can lead to cirrhosis....My last liver biopsy was in 1992, I believe....My liver was already showing some fibrosis....Now I will need another biopsy to see if it is starting to turn cirrhosised....I started having problems with getting short of breath and collasping, so another heart test was done one me...The results are that my heart and lung do not work together as they should...My CHF is the cause, but is not acting like other CHF where the fluid builds up around the heart...Instead my heart will not pump my lung out like it should so the fluid is in the lung...Extra fluid pills hopefully will help....My muscles are weak and sore most of the time...I am in the wheelchair constantly out of the house and will probably be going into it in the house very soon, due to the collasping....I have to continually use the walker, but it doesn't stop me from going down...I suffer irritating headaches from the time I get up until I go to bed....I can't remember names, places or time like I should...As you read this you are probably wondering why I am telling you all of this....This is really sort of a diary, so that you will know what is happening to me and my body...Funny thing...I had the DNA done, and it came back negative, so a specialist doesn't think I have HH...Well, everyone else disagrees with him, including my doctor...And so my diagnosis is still Hereditary Hemochromatosis...There are several HH'ers who get a negative DNA, but we are only tested for a couple of genes known in HH...There are more genes that haven't been found yet and it is know that at least 8% of HH'ers will show negative on tests and still be a full blown HH'er...I have to laugh, as I never was one who was normal about anything....Not from the day I was born...So, we don't worry too much about what my DNA said...I am beginning to work on a new Web Site....It will be about Bluegrasser's in Washingstate, of which I use to be one...It is going to be fun to work on it, and it will also keep me busy...I have to stay busy and keep my humor....Without them, I have nothing...I thank the Lord for those....I will keep updating on me, so you can see where it goes with me....Also, if you need to join FHHF at the top of the page...A wonderful group who can talk about Hemochromatosis all day long, and know what they are talking about....They will answer questions and direct you to where you need to go to be tested and treated...Don't wait till its too late...Do it now...God Bless....Pam...
I have recently started a NASH (Non-Alcoholic Steatohepatitis> Support List...I have found a lot of HH'ers also have NASH and some who are not HH'ers have NASH...So little is known about NASH, but it can be as deadly as HH...If you would like to subscribe to the NASH List and become a part of our support group, click below:...
Click to subscribe to NASH
It is now January 2005, and I thought it was time I better update on this site...I am still hanging in, and yes, I fooled the doctors so far...I'm now 61 and will be 62 this year....I've had some heart problems and lots of mini strokes, but I will not let these diseases beat me or get me down....I'm also confined to an electric wheelchair outside of the home...My walking distance is about 25 feet, but in the home I have plenty of things to hang onto, like crutches, to get me around...Over the past few years we have lost a daughter and a grandson and had a new grandson born....My husband and I moved to Tucson, Arizona in May of 2003...It was a hard move, but we are now settled...The weather is much better for us now than Washington State was....The sun helps the ole' aches and pains...The email has also changed, so if you want to email me, feel free at pklopez1@cox.net ... I will try to keep this updated without four years going by...God Bless...Pam
February, 2006 is here and so am I...My health has failed a little more, but then at my age I'm not surprised...Nothing has really changed since last year for me, but it has for my husband...He had a total hip replacement in May of this year and had a stroke the day after surgery...It affected his eyesight and his short term memory...He gets very discussed and discouraged due to this...We were in an auto accident the week before Christmas coming from church...No one was hurt, but our drivers side door was crushed...Other than that, all is well, or as well as can be expected...I've had some emails from some who have HH or a family member who has HH...
This year we also found my brother that we didn't know we had...He looks like my dad and I'm really excited about that...My genealogy page is bringing forth relatives I didn't know I had...I'm glad for this...We all need family...Hope to hear from more of you...God Bless...Pam
 Links To Other Sites On The Web
 FAQ's
Home Pages on Iron Overload
To Be Young Again
Not Just in USA
Hemochromatosis Society
Humor Helps
The Munn's Page
Chris & Lisa's Zoo
Get Genetic Test
Mario's Pages of Love and Friendship
REMEMBER THE WORD "HEMOCHROMATOSIS"
REMEMBER THE POSSIBILITIES WITH
NO TREATMENT
REMEMBER THOSE WHO HAVE ALREADY
DIED OR ARE DYING
ONE SET OF FOOTPRINTS
GOD IS CARRYING ME
Do not stand at my grave and forever weep;
I am not there, I do not sleep.
I am a thousand winds that blow;
I am the diamond glints on snow;
I am the sunlight on ripened grain;
I am the gentle autumn's rain.
When you awaken in the morning's hush;
I am the swift uplifting rush;
Of quiet birds in circled flight;
I am the soft stars that shine at night.
Do not stand at my grave and forever cry;
I am not there, for I did not die.
This Page is Dedicated to all who have died from
HEMOCHROMATOSIS, those who are dying and those
who are suffering from it, and especially to my
father:
CHARLES EBEN BOWLEY, JR.
He Was My Hero
"1918-1986"
Sign Guestbook
View Guestbook
A SPECIAL MEMORIAL FOR JOSEPHINE BOGIE THOMAS
JOSEPHINE BOGIE THOMAS
APRIL 25, 1921 - MAY 13, 1999
Josephine and her daughter Sandra formed the American Hemocromatosis Society, because Josephine was diagnoised with this disorder....Josephine worked hard to spread the word on HH and was a patient, activist and an AHS Board Member...Her dying wish was that everyone be tested for Iron Overload, so they do not have to suffer what she had suffered...A memorial has been set up thru the AHS Society.
American Hemocromatosis Society
777 E. Atlantic Ave.
Z-363
Delray Beach, Florida
33483-5352
There is a Josephine Bogie Thomas Memorial Fund.
If you would like to make a donation, please make your donation payable to AHS and send to the above address.
SHE GAVE HER LIFE WITH A WISH THAT EVERYONE BE TESTED AND TREATED. IN HONOR OF HER MEMORY, PLEASE GRANT HER THIS WISH. BE TESTED BY YOUR DOCTOR FOR HEMOCHROMATOSIS.
MEMORIAL TO THOSE WHO HAVE DIED FROM
HEMOCHROMATOSIS AND
TO THOSE WHO DIED IN FAMILIES WITH HH
Charles Eben Bowley, Jr. - 68 - 1918-1986
Raymond Munn - 38 - 1956-1995
**Johm R. Jones - 41 - 1956-1997
**Peggy S. Brown - 37 - 1960-1997
**Gilbert Munn - 81 - 1878-1959
**Charles Munn - 54 - 1911-1965
**Howard Munn - 49 - 1919-1968
**Willard Munn - 52 - 1914-1966
**Louise Munn - 70 - 1919-1989
**Elmer Charles Green - 37 - 1914-1951
Jack R. Boos - 72 - 1918-1990
Maribelle Antoinette Hall - 57 - 1922-1980
**Martha Kate "Kitty" Crain - 77 - 1896-1974
**Charles Eben Bowley, Sr. - 69 - 1889-1958
**Earlett Tull (Vineham) - 72 - 1922-1995
Harold Gast - 63 - 1918-1981
**Clarence W. Thasen - 58 - 1915-1973
**Dagmar N. A. Hermanson Lee - 44 - 1898-1942
Joyce Elaine Beard - 58 - 1937-1995
Garry William McFall - 61 - 1936-1998
**Albert Benedict, Sr. - 64 - 1929-1993
**Francis Marion Bowley, II - 56 - 1936-1991
Virgil John Hollis - 74 - 1917-1992
Edgar Swann - 58 - 1910-1968
Willie Swann Vest - 80 - 1916-1997
Carl Ledlow, Sr. - 58 - 1916-1974
William E. Swann - 58 - 1942-2000
Marvin Miller - 65 - 1937-2003
Robert Batey - 66 - 1938-2004
Luke Baglee - 22 - 1981-2004 (Juvenile Hemochromatosis)
**Means not confirmed HH, (no autopsy),
but confirmed HH in the families. Deaths registered
as either heart attack or cancer.
If you would like a name added to this Memorial,
please email, or put the information under the comment
section on my guestbook page, with the name, or
relation if preferred, the age, and the birth year and
the death year. This page is for those gone and their
families who suffer from this disease. As soon as you
send me the information, it will be added to the page.
God Bless.
PKLOPEZ1@/COX.NET
MY FAMILY NAMES - DOING GENEALOGY
Are We Related? Are You A Gene Carrier?
BOWLEY
FUSSELL
PAULK
SHIER/SHIRE
HERMANSON & RASSMUSSON
LEE
1877 LOVE LETTERS
FAMILY ALBUM
PAGE 2 OF FAMILY ALBUM
PAGE 3 OF FAMILY ALBUM
PAGE 4 OF FAMILY ALBUM
LETS HAVE SOME FUN
LETS GO TO A BLUEGRASS FESTIVAL
Click On My Banner For Next Page
© 1997 pklopez1@cox.net
I use this stamp program for printing postage, as it is a way to do your mailing if you are shutin...Try it out...I don't have to depend on people to go to the post office for me anymore, and I know now that things are mailed immediately. Check it out.
 
Previous
Index
|
This "Hope Ring" site is owned by Pam Lopez.
This Sunflower's Selected site is owned by 