"Beary Special Kid" Meet Jessy F. I ask you today to send a card of love to this "beary Special Little Girl" It costs you one 33cent stamp, yet brings a world of cheer to this sweet child. If you would like to send a gift too, please feel free.........we of course encourage Teddy bears! Please view Gift ideas for inexpensive thoughtful gifts, as well as postal rules. Gift Ideas All card/gifts are to be mailed to: Jessy F. P.O. Box 84 Macedon, N.Y. 14502 Jessy's information, as with all Beary Special Kids, has been verified by me........directly. She truly is a sick little girl.......her family needs prayers and support. Please send her your love. Jessy is a very sick little girl who needs a lung transplant. Without it, Jessy will only get worse. Even with it, she may never be a normal person. There will be medicines, doctors, and such for the remainder of her life, but she is a trooper--as are her mom and dad. They are great parents that work hard and love their children. We sometimes wonder why God, in his wisdom, allowed this to happen, but we know he has a plan--He is in control. We know too that we have to do our part. This child also has a 9mm hole in her heart. She is only 7 years-old-- Too young to have to bare this burden. Jessy has one sister, Kate. Kate is ten years old. I urge you to support Jessy during this time by sending her a card. Her parents Mike and Carol would appreciate all the love and prayers you have. Her dad will keep us posted on Jessy here. Look for more information in the future. Jessy F. P.O. Box 84 Macedon, N.Y. 14502 5-16-99 Added Update from Jessy's Parents: The week of May 10th we went to St.Louis Children's Hospital. After two days of tests and bloodwork the doctors gave us our choices... If we do nothing and leave Jessy as she is with the VSD {hole in her heart} and pulmonary hypertension she may or may not live to be a teen, option #2 is to start her on a continuous infusion of a medicine called prostacycline through a Broviac catheter which would need to be infused 24 hours a day, 7 days a week. The hope is that this drug would open up the blood vessels in her lungs enough that she would not require continous oxygen and possibly would reverse some of the damage to her lungs and delay the need for lung transplant . Unfortunately there is not a cure only medicines and procedures to improve her quality of life and life expectancy. Within the next few weeks we will need to return to St.Louis for the initial dosing of the Prostacycline and insertion of the Broviac Catheter into her chest. There is also no time frame for how long this medicine will help her or when she will have no choice but to proceed with lung transplant. This is as much as I can tell you at this time but we will keep you updated as much as possible. With much appreciation, Mike and Carol
Meet Jessy F.
I ask you today to send a card of love to this "beary Special Little Girl"
It costs you one 33cent stamp, yet brings a world of cheer to this sweet child.
If you would like to send a gift too, please feel free.........we of course encourage Teddy bears!
Please view Gift ideas for inexpensive thoughtful gifts, as well as postal rules.
Gift Ideas
All card/gifts are to be mailed to:
Jessy F.
P.O. Box 84
Macedon, N.Y. 14502
Jessy's information, as with all Beary Special Kids, has been verified by me........directly.
She truly is a sick little girl.......her family needs prayers and support.
Please send her your love.
Jessy is a very sick little girl who needs a lung transplant.
Without it, Jessy will only get worse. Even
with it, she may never be a normal person. There will be
medicines, doctors, and such for the remainder of her life,
but she is a trooper--as are her mom and dad. They are great
parents that work hard and love their children. We sometimes
wonder why God, in his wisdom, allowed this to happen, but
we know he has a plan--He is in control. We know too that we
have to do our part. This child also has a 9mm hole in her heart.
She is only 7 years-old-- Too young to have to bare this burden.
Jessy has one sister, Kate.
Kate is ten years old.
I urge you to support Jessy during this time by sending her a card.
Her parents Mike and Carol would appreciate all the love and prayers you have.
Her dad will keep us posted on Jessy here.
Look for more information in the future.
5-16-99 Added Update from Jessy's Parents:
The week of May 10th we went to St.Louis Children's Hospital. After two days of tests and bloodwork the doctors gave us our choices...
If we do nothing and leave Jessy as she is with the VSD {hole in her heart} and pulmonary hypertension she may or may not live to be a teen, option #2 is to start her on a continuous infusion of a medicine called prostacycline through a Broviac catheter which would need to be infused 24 hours a day, 7 days a week.
The hope is that this drug would open up the blood vessels in her lungs enough that she would not require continous oxygen and possibly would reverse some of the damage to her lungs and delay the need for lung transplant .
Unfortunately there is not a cure only medicines and procedures to improve her quality of life and life expectancy. Within the next few weeks we will need to return to St.Louis for the initial dosing of the Prostacycline and insertion of the Broviac Catheter into her chest.
There is also no time frame for how long this medicine will help her or when she will have no choice but to proceed with lung transplant.
This is as much as I can tell you at this time but we will keep you updated as much as possible.
With much appreciation,
Mike and Carol
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