Frustration. First in getting a Dr. to listen to me. Like I said, if your Dr. does not listen to you then it's time to find a Dr. who will. You are the child's mother and you know your child best. You know when something "just isn't right". Keep pressing your Dr. to give you some answers. Offer some literature to back-up your suspicions...basically, do whatever you have to do to make him/her listen to you.
Anger. "Why me?" "Why my daughter?"....for that matter, "Why anyone's child?"
Guilt, guilt, guilt. My daughter is hurting and there is nothing I can do to stop it. Feeling like I had caused this some how. Even though I know I did nothing to cause this, there is always that doubt. And, "Why can't it be me instead of her?"...this is the one that still keeps me up at night.
Saddness. Sometimes, when I watch my daughter play with "normal" children I am profoundly sad. I watch the other children run and jump while they play. My daughter is struggling to keep up with them but lagging behind. As a mother, this is difficult for me to watch. But, I cannot shield my daughter from the world. She needs to learn her own limitations.
Jealousy. This sounds ridiculous, huh? True! I watch the same "normal" children ride their bikes swiftly down the sidwalk, jump, squat down and pick up toys with ease...and I know that my daughter cannot do that. As an adult, I know that it is ridiculous to feel jealousy, but it is still there. (Than, again, enters the guilt factor!)
Acceptance. I actually had to "teach" myself to change the things that I could change and accept the things that I cannot.
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