Welcome to my Guestbook!

Annette Redmond - 12/25/00 04:52:25
My Email:spunkyredmond@cs.com

Comments:
Hi l liked youe web page . My grandsons name is Arion and he will be a year old Jan 12th and his Moms name is Amber and she is 22. She doesnt understand why or what Arion has and l'm trying to get as much info as l can to help her with him. Thanks Annette and Happy Hoilday.

Jo White - 12/08/00 18:48:11
My Email:whitefamilyw4@msn.com

Comments:
Hi, My name is Jo White. I am a 39 yr old. mother of a charge baby girl who lived only 3 months. Since her passing, I did not get counseling at that time. Two years after her passing, and after giving birth to a very healthy son, I suffer from Post Traumic stress disorder, and sever depression. Can someone out there help? I don't know to go on without my baby. I don't know who to move forward without

Kathy Spinozzi - 12/08/00 04:57:08
My Email:TASJJs@aol.com

Comments:
I'm the Mom of a 20 year old son with charge. Just diagnosed in 1997 we did a lot of hunting and pecking through the medical community. I was motivated to ck out this site because of resufacing of old and new medical issues i.e. cleft palate repair, pneum nia, ASD and scoliosis.

Amanda Howard - 12/04/00 23:16:27
My Email:ramby@gofree.indigo.ie

Comments:
I found your site full of information, we have a son Jack nearly 3yrs who has CHARGE. We live in Ireland and have had very little contact with other families. I now know of 3 others here all girls under 2yrs with CHARGE in Ireland. Keep up the good wor .

Miriam Gomez - 11/27/00 20:11:37
My Email:my1094@aol.com

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Jessi and Molly - 11/27/00 04:55:16
My Email:jkuntz13@yahoo.com

Comments:
Thanks for all the great info.

kim - 11/25/00 02:33:24
My Email:lyle.kim@onlink.net

Comments:
I think what your doing is great. My husband wishes he would of been able to get info. and support on CHARGE Syndrome back 8 years ago when his son was born. Sadly he past away 6 years ago. My husband has never fully recovered from the death of his son, a d I don,t think he ever will. But he continues to look for information on the syndrome, and I will continue to help and support him. And like I said what your doing is great, we only wish we had support like this in Canada.

kim - 11/25/00 02:33:15
My Email:lyle.kim@onlink.net

Comments:
I think what your doing is great. My husband wishes he would of been able to get info. and support on CHARGE Syndrome back 8 years ago when his son was born. Sadly he past away 6 years ago. My husband has never fully recovered from the death of his son, a d I don,t think he ever will. But he continues to look for information on the syndrome, and I will continue to help and support him. And like I said what your doing is great, we only wish we had support like this in Canada.

christy - 10/27/00 14:57:34

Comments:
I'm a nursing student at Johns Hopkins University and I'm caring for a 2mo old with CHARGE syndrome. Your web site and links are very informative and packed with beautiful children. Thanks for helping me out.-Christy

Lori Brittell - 10/17/00 03:17:34
My URL:http://www.oocities.org/the_dutch2000/index.html
My Email:dutch_70@excite.com

Comments:
Hi, I love your site- I put a link to it on my site, (I hope that's okay). I have a 5yr.old daughter w/ CHARGE & I think you're doing a great job giving information to others- keep up the good work & God Bless!

- 09/19/00 00:31:03

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Belinda Wayman - 08/25/00 03:00:43
My Email:bell@yahoo.com

Comments:
I wanted to let you know we made it though the heart sergery! That was one big worry to get though,but we did it!! Every thing went wonderful, even beter than expected!!! Thanks to every one for there suport!! Your friend Belinda

cathie josephson - 08/16/00 02:36:22
My Email:nptqueenie@aol.com

Comments:
I loved the page, i just saw it for the first time, now if i can rememebr how to get there again, i am still learning this computer!

Rebecca Weeks RN - 08/08/00 14:21:54
My Email:rebecca_weeks@hotmail.com

Comments:
I am a RN with a school System in Alabama. We has just enrolled 2 new students with Charge syndrome (not Related). I was trying to find out as much as possible about charge to help with any physical needs, as well as any information I could give their t achers. Please let me know of anything we should be doing to give these kids the best opportunties available. I could find NOTHING about Charge in any of my nursing books. Thanks, Becky Weeks

ELENA - 07/29/00 04:50:52
My Email:RCECandSC

Comments:
I love being able to read and find out more information about children with Charge. My husband and I also had a child with Charge but the good LORD toke her when she was only 1month and 21 days old. I still want to be able to understand and help others a so, if I can but I really did enjoy reading this site Thanks, Elena

yvetteschroeder - 07/20/00 19:22:08
My Email:birddog117-juno

Comments:
thank you fir you webpage i enjoyed reading it.

Tia - 07/18/00 07:14:01
My Email:sexy_babe_v1972@hotmail.com

Comments:
i was looking at this page beacuse i have to do a five talk on a person who has charge and how i would feel having this and what help i could get the pic were very touching thank you for macking this page of informastion i was trully insiep your thankfully Tia.17

trish potter - 07/07/00 18:59:39
My Email:TPo3398618@aol.com

Comments:
your web site has been a very interesting find. my son michael was diagnosed with charge at the age of 31/2yrs back in 1983 when it was first founded. he is now 22yrs old. it is so good to know all this info and sharing is now available to young parents. ost dr. back then were educated by myself and michael.

Ken Wilson - 07/07/00 13:59:06
My Email:wilson4_23454@yahoo.com

Comments:
I don't know if my last message made it on. I can't wait until we kick this syndrome in the a--!Pardon my language but I get fired up.

Belinda Wayman - 07/03/00 04:49:53

Comments:
I would like to thank you for this web page. I have a 7 month old son with CHARGE and he is a delightful addition to our family. Your web page has helped me learn about CHARGE and I can share info. with Grandparents, Aunts, Uncles, and even strangers. I thank you for helping me and others understand what CHARGE is all about. Thanks Your Friend Belinda

- 06/30/00 20:39:33

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Janice Wolfe - 06/27/00 20:41:26
My Email:jwolfe@cvty.com

Comments:
Hello, I am a Nurse case manager and was looking for resources for a family with a child with CHARGE. I plan on referrng them to you website. Thanks for being there to support others. Janice Wolfe RN, MHS, CCM Maternal/Child Health Case Manager HealthAmerica

Diane Leigh - 06/25/00 18:10:55
My URL:http://freeserve
My Email:diane@leigh50.fsnet.co.uk

Comments:
My grand-daughter is nearly three weeks old and has been diagnosed with charge. We need all the information available to be able to ask questions and see how the future will be for her.

Ellen Steinbrick - 06/19/00 18:27:40
My Email:esteinbrick@aol.com

Comments:
Just looking over you site. I'm a mom of an almost 3 year old little boy diagnosised with CHARGE.I am very interested in talking to other parents with children that have a similar diagnosis.Thanks

Belinda Wayman - 06/13/00 19:41:58
My Email:bellslc@yahoo.com

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Robert Grambau, M.D. - 06/12/00 22:31:00
My Email:RFGrambau@aol.com

Comments:
I am a child psychiatrist who has been working with MR/DD adults and children for 10 years. I am north of New York City, in Pleasantville. One of patients has CHARGE syndrome. His symptoms are difficult to treat - especially the perseveration. I am ve y familiar with the use of psychotropic medication, but also had very extensive psychoanalytic-psychodynamic based play therapy training and psychotherapy training. I don't claim to be an expert, but I am trying to learn everything I can. Best wishes to you and the organization. I am referring the patient's parents to your web site. Thanks, Rob

Susie Soriano - 06/11/00 16:45:43
My Email:ccityc@texas.net

Comments:
I have a son with CHARGE, he is going on 5 years old. I enjoyed visiting this site.

Michael / Judah Semenak - 06/08/00 02:40:50
My Email:msemenak@yahoo.com

Comments:
Our daughter Devin has bee diagnosed with CHARGE. She is 11 months old, and a darling. Thanks to a caring nurse at the Montreal Children's Hospital, we were able to get in touch with this web site. W

Diane - 06/06/00 02:41:45

Comments:
I am amazed by your web site. I had a sister who died 10 years ago at age 26. She was born with tetralogy of fallot, was deaf, never went through puberty, had facial paralysis and no earlobes as well as problems with nasal mucous and swallowing. Until t day I didn't realize there were other people like her! We considered her situation a rubella related collection of birth defects. It is incredible to see this as a syndrome. It also follows our families questioning of rubella as a cause since my Mom neve had the rash and no one else in the household came down with it. I'm glad that families and CHARGE people now have places like this to learn about their disability and find that they are not alone. I wish my sister could have known there were others like her.

Natalie - 05/11/00 20:41:05
My Email:nasans351@hotmail.com

Comments:
Hi! I have a 4 year old son with CHARGE. He is absolutely precious! I have enjoyed your website and am so glad to know there is a place I can go to find out specific information about CHARGE and visit with other parents.

Jill Teats - 05/06/00 03:13:58
My Email:jteats@accessus.net

Comments:
I have a 12 year old daughter with CHARGE. We are 2 months away from placing her in a deaf/blind school, partially because of the toll it is beginning to take on the rest of the family. It was interesting to read your web site. Thanks!!

TARA MORRIS - 05/05/00 01:22:43
My Email:JTMORRIS1@MSN.COM

Comments:
HELLO CASEY LOVE YOU GUYS BUT ISN'T BABY BOY NOW 9? TARA

DONNA LYONS - 05/03/00 19:33:24
My Email:LYONSDONNA@HOTMAIL.COM

Comments:
I HAVE A 6 YEAR NIECE WITH CHARGE. SHE IS REALLY DOING GREATER THEN EVER EXPECTED BY HER DOCTOR'S. SHE IS IN KINDERGARDEN THIS YEAR WITH HOPES OF GOING TO 1ST GRADE NEXT YR. I WAS WONDERING ABOUT BEHAVIOR PROBLEMS. SHE IS GETTING BOSSY WITH THE OTHER IDS IN CLASS. IS THAT JUST A 6YR OLD? MY SISTER WANTS ME TO GET ALL INFOR I CAN ON HER GROWING YEARS. ANY HELP WOULD BE GREATLY APPRECIATED. THANKS FOR YOUR WEB SITE....

Alison Humphrey - 05/02/00 08:49:17
My URL:http://www.uwic.ac.uk
My Email:AHumphrey@uwic.ac.uk

Comments:
I am a Speech and Language Therapist looking for information to treat the swallowing problems of a child with CHARGE syndrome. Thanks for the information.

James & Diane - 04/19/00 20:43:47
My Email:DB8T@aol.com

Comments:
Thanks for this wonderful web site. It is nice to know that we aren't alone out there in the world with our newborn daughter (Michele Renee) who has CHARGE. We were crushed when we learned of the disorder and all of the problems that just kept stacking up seemingly without end. If you have any othe infor or resounces please e-mail us. All Our Love to all those others that we now know are out there!! GOD BLESS YOUR HEARTS!! Jim, Diane & Michele

Shannon - 04/13/00 16:54:52

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Sean Stone - 04/11/00 19:31:34
My Email:Sean@Stone83.freeserve.co.uk

Comments:
Our names are Sean and Marcia Stone and we have a son called Rhys who is 20 months old and has been diagnosed as having Charge Syndrome. Rhys also has an elder brother called Liam who is nine years old. We live in Dartford in England, and have found your eb page to be very informative and really interesting. Hope we can talk again some day, bye for now, Sean, Marcia, Liam aand Rhys.

Beth King-Mock - 04/01/00 18:01:03
My Email:MakBeth@aol.com

Comments:
What a terrific website! Mahalo for providing links to everything I need to know for better service for my studentS(!) with CHARGE Syndrome

Carolyn Breeden - 04/01/00 02:29:41
My Email:ewbcac@aol.com

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Richard Cody - 03/25/00 23:22:13
My Email:Mkrmolds@aol.com

Comments:
My grandson Matthew was just diagnosed with CHARGE and I'm looking for info

Bebeth - 03/24/00 06:28:52
My Email:be_beth@hotmail.com

Comments:
your site has given me much information. My niece was born a month ago, w/multiple problems. They have yet to dx her, but in reading all of the symptoms, she fits MANY of them. We are at a loss not knowing what to do, or expect. We are searching for an information avail. Thanx for being here. Bebeth

Cari Covington - 03/16/00 03:52:12

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- 03/14/00 23:11:26

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- 03/10/00 17:44:21

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Tammy Duggan - 03/05/00 04:11:43
My Email:tduggan@ns.sympatico.ca

Comments:
What a beautiful sight Casey. I am Kennedy Weir's aunt from Nova Scotia and I haven't been to your page in some time. It certainly haas been growing. Take care, Tammy

vicki williams,otr - 02/29/00 01:26:56
My Email:saw185@cleanweb.net

Comments:
thanks for having such a great site! I am treating a child with charge sydrome, a new diagnosis to me! I am trying to learn all i can to help her! thanks again! vicki ps if any therapist or family member has info they want to send to me please feel free ny info would be appreciated! i will definately join the chats!

- 02/28/00 18:17:57

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amanda howard - 02/26/00 00:47:15
My Email:ramby@gofree.indigo.ie

Comments:
our son jack was born on 4 feb 98 and diagonised with charge a week later we are not sure if there are any other children with charge in ireland but we are keen to talk to others of their experience

Debbie Cachia - 02/17/00 16:47:50
My Email:debbie.cachia@sympatico.ca

Comments:
Hi Minnow yous site is great, I have a 2 and a half year old daughter with charge and it has been a difficult time, but she is a ray of sunshine and we love her. Thanks Debbie.

- 02/06/00 20:53:40

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peg kolm - 02/03/00 08:10:35
My Email:pkolm@npr.org

Comments:
Thanks, and thanks again for all this! We have a nine-year-old with CHARGE. We're crazy about her, and are happy she's with us. But it's great to see all this information and support out here, available anytime. When we first found out, the Quota Club as there for us...but it was a long-distance call, office hours only, and not really able to speak to the parent's frantic fears and realities. I'm sure this site has become a real help to those just coming on our journey...

maria halloran - 02/02/00 15:23:26
My Email:kannew@eclipse.net

Comments:
it's nice to have a place to go to where we are all experiencing some of the same issues with our special charge children. thank you!!

Tamara Steele - 01/31/00 22:21:28
My Email:DSteeleTam aol.com

Comments:
I enjoyed web page.I am new at this,I joined the list...now if i can fiqure it out..maybe i'll be able to join in..my son William (he is 5 )has charge, I have so many quetions..thanks for getting me started!

Denise Caldwell - 01/23/00 23:45:47
My Email:rcndc@mcleodusa.net

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Alicia Brown - 01/22/00 21:31:26
My Email:babyred68@hotmail.com

Comments:
I had my little girl when I was 16 and this has been hard for me havent really found anyone who knows much about the syndrome.Hailey will be four in April and I am so glad i finally found something.Thank you for ths page.

Ann-Mary Linhart - 01/18/00 19:48:28
My Email:foerderverein@odilien.at

Comments:
looking for CHARGE-parents with young adults in Germany, Switzerland, Austria or Sweden! I have a 20 years old CHARGE-daughter.

- 01/14/00 10:48:39

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HC Grimestad - 01/12/00 13:28:08
My Email:hgrimestad@hotmail.com

Comments:
It's not easy to get information about CHARGE. I'm a physiotherapist - and have a child with CHARGE in treatment. Very challenging! hcg

johnkelleher - 01/11/00 17:07:37
My Email:johnkelleher4@hotmail.com

Comments:
Keep up the good work Thank you.

Ronda Penman - 01/09/00 04:55:14
My Email:Redroni63@aol.com

Comments:
Great sight Casey! I found it looking up Lobar Holoprosencephaly. love ya , Ronda

david deroeven father of noah - 01/04/00 02:16:01
My Email:none

Comments:
if you know of anybody with info on special formulaes.ie hypo allergetic we can be reached at 54 laird dr. trenton ontario k8v1a7

Deb D'Luna - 01/03/00 20:36:52
My Email:debdluna@aol.com

Comments:
Hi Casey! Finally got around to getting on-line and finding you. Thanks for the web site. You've done a fantastic job. But I already knew you had. I look forward to seeing you in Indy (my home town - though I'm in Irvine, CA). Happy New Year! Deb

Cindy Krencicki - 12/30/99 23:57:59
My Email:tkrencick1@aol.com

Comments:
I love this web site!!! This is very informative and I hope to learn more and more about Brad (my CHARGE son) that I may not already know after 9 years.I have always wondered "WHy" and is there a common thing which we were exposed to or a common problem n our pregnancies which caused these birth defects? That has always been on my mind for the past 9 years.Even though we love our son we wonder if there is a basic medical reason why he is the way he is. ANyway, I plan to check back here often. ck

Lynn Pigage - 12/22/99 23:43:50
My Email:humanrights@yhrc.yk.ca

Comments:
Really like your page. Do you know if the Chats on Wednesday and Saturday are still going on?

Sheryl - 12/14/99 08:19:21
My Email:snchatten@usa.net

Comments:
Looking for information. I am a 16 year teacher of students with visual impairments. For the last 10 years, I have concentrated my service area to infants and early childhood with multiple impairments. I have a new referral on a CHARGE baby one week of ag . Any comments will be helpful

jeff baker - 11/26/99 15:58:28
My Email:jethro@pacwest.net

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Ann - 11/24/99 14:49:28
My Email:abrocke1@ic3.ithaca.edu

Comments:
I am a physical therapy student treating a child with Charge syndrome and I have chosen to inservice the other rehab staff members on this syndrome. Your webpage has been very helpful!

sue dickinson - 11/21/99 20:58:57
My Email:jakedickk1@netlineuk.net

Comments:
first visit, will certainly call by again. daughter 11 years old with charge. live in england.

Cydne Park - 11/19/99 04:35:15
My Email:efrn@telusplanet.net

Comments:
Minnow, I have a 6 1/2 year old little girl with CHARGE. I am experiencing alot of difficulty with her ability to relax, be quiet, stop moving, etc. - she is affecting her sister who is 8 1/2(Georgia). Georgia seems depressed and I am becoming increasin y concerned with Amy's inability to understand many things. She is blind - some vision in her right eye and profoundly hearing impaired, g-tube fed, heart surgery 2 yrs ago, chronic respiratory condition. She is very bright but out of control and is oft n up many times during the night keeping her sister & I awake. If you have any suggestions I would be extremely greatful. I hope I am communicating in the correct spot and that you will get this message. Thank you kindly. Best Regards, Cydne PS - your web is Great - You have done an amazing job! I will have a web page by January for the Exceptional Families Resource Network - EFRN. Our Web address will be http://efrn.ab.ca

Diana Ireland - 11/14/99 18:18:30
My Email:direland@calum.uwaterloo.ca

Comments:
I really enjoyed your web site....I am developing a pamphlet on CHARGE syndrome to be given to parents...your website has given me alot of information...thank you.

Chantelle Mclaren - 11/11/99 14:32:56
My URL:http://angelfire.com/ky2/StargateSG1
My Email:ChantelleALM@yahoo.com

Comments:
Just thought I would say a quick hi! luv Chantelle (charger)

NIC WARWICK - 11/10/99 14:10:14
My Email:horncastleusedcars@compuserve.com

Comments:
I HAVE AN 8 MONTH OLD DAUGHTER WHO HAS BEEN DIAGNOSED WITH CHARGE ASSOCIATION.HAVING NEVER HEARD OF CHARGE BEFORE DANIELLA'S BIRTH I FIND ANY INFORMATION HELPFUL.THANK YOU. NIC WARWICK ENGLAND.

NIC WARWICK - 11/10/99 14:10:06
My Email:horncastleusedcars@compuserve.com

Comments:
I HAVE AN 8 MONTH OLD DAUGHTER WHO HAS BEEN DIAGNOSED WITH CHARGE ASSOCIATION.HAVING NEVER HEARD OF CHARGE BEFORE DANIELLA'S BIRTH I FIND ANY INFORMATION HELPFUL.THANK YOU. NIC WARWICK ENGLAND.

NIC WARWICK - 11/10/99 13:45:42

Comments:
I HAVE AN 8 MONTH OLD DAUGHTER WHO HAS BEEN DIAGNOSED WITH CHARGE ASSOCIATION.HAVING NEVER HEARD OF CHARGE BEFORE DANIELLA'S BIRTH I FIND ANY INFORMATION HELPFUL.THANK YOU. NIC WARWICK ENGLAND.

jo tyler - 11/09/99 20:28:28
My Email:userst@aol.com.uk

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Helena Rytkönen - 11/09/99 14:09:48
My Email:helena.rytkonen@lel.fi

Comments:
Greetings from Finland! My daughter is now 12 years old. She is very kind and intelligent girl in spite of all the difficulties she had (in her childhood) and is still having.

Sharon Manning - 11/08/99 14:53:39
My Email:sharrn@buffalo.com

Comments:
I'm a nurse at a school for the Deaf in Buffalo, NY. We now have a student with this syndrome. We have joined the Charge Syndrome Association, but our OT and PT as well as the teaching staff are looking for any ideas on how to best serve this student. ny thoughts or ideas please email me. Thanks

nancy ralston - 11/06/99 18:01:35
My Email:nsralston@yahoo.com

Comments:
I am a mother of a 12 year old girl with CHARGE,and have learned alot of info.through the years,but have just found this web which i am looking forward to getting on once in awhile to learn new info. because we are always learning about our kids..

- 11/02/99 01:14:43

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Natalie Walker - 10/27/99 05:52:38
My Email:nvwalk@aol.com

Comments:
I am Gwena Chavez's sister and a nursing major at Purdue University, West Lafayette, IN. I have never read about this disorder, and just stopped into learn a little. I just finished my pediatric rotation and graduate in May. Thank-you so much for shari g the info!!

Jo Lene Maternowski - 10/26/99 01:34:48
My Email:jam347@airmail.net

Comments:
I'm a special education teacher. One of my students may have CHARGE Syndrome. I'm looking for information to help me help him.

Denise Bowers - 10/21/99 23:50:41
My Email:jackverne@aol

Comments:
Now that I have found you I will check in occassionlly. I'll try to remember the Sat. night chAt room.

m.c.v.d.boon - 10/13/99 09:14:39
My Email:m.c.v.d.boon@st.hanze.nl

Comments:
Hello, My brother has a 5 months old son with CHARGE. He would like to know more about CHARGE, so if you know more websites about CHARGE, please mail me!!!

m.c.v.d.boon - 10/13/99 08:59:21
My Email:m.c.v.d.boon

Comments:


jelena - 10/03/99 22:12:38
My Email:jelena@sisna.com

Comments:
casey what a wonderful page! After a year and a half of learning from you about our 'twin sons" unique needs, I decided it was time to join the CHARGErs :) It is amazing how similar kids with septo-optic dyplasia and charge are. Thanks for all your hard work, great info, and willingness to share! You have done so much to imprvove my son's life! much love, jelena

Elizabeth LaFave - 09/27/99 16:35:42

Comments:
My best friend's daughter was diagnosed today with charge syndrome. thank you for such wonderful information. I will tell her about your web site.

MARIE PATTERSON - 09/27/99 11:12:56
My Email:austcharge@hotmail.com

Comments:
Hi everyone,we have a 16year old girl with CHARGE. Adolscence and puberty are the two big issues,neither seem to have arrived,adolscence maybe not puberty.Julia is only the size of her six year old cousin.the australasian ChARGE Ass support organization is very strong and always looking for new SPECIAL Kids and Parnts.We can be contacted at the email address.Based in sydney we cover all Australia and NZ.Next conference in Brisbane 2000.

deanna chaptman - 09/23/99 00:22:15

Comments:
I left a story about me and my son good luck to every one maybe someday I can meet some of you.

deanna chaptman - 09/23/99 00:21:59

Comments:
I left a story about me and my son good luck to every one maybe someday I can meet some of you.

pat pettry - 09/20/99 02:23:05
My Email:pettry@kellnet.com

Comments:
hi, i'm a home health nurse taking care of a 3 yr old charge little boy...he has all of the charge letters...if you could offer any sugg to help him at home i would like that..he's wonderful..hes getting pt,ot, and speech..hes crawling...thanks

Tracey Steiner - 09/11/99 08:44:02
My Email:traceyls@alphalink.com.au

Comments:
Thank you for your information re C.H.A.R.G.E, especially the other links your provide

Donna Roten - 09/07/99 07:45:00
My URL:http://dgr.@ yahoo.com

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Edith-Ann Bryant - 09/05/99 15:12:09
My Email:wilfam@coqui.net

Comments:
My cousins son was born with this syndrome. He is only a baby now and still hasn't been home since he was born. I was just browsing through the internet to look for information concerning this syndrome. Thank you for sharing with us your information... God bless Cynthia! She is Jesus child and al ays will be protected by him!

Mava Brown - 09/03/99 14:40:10
My Email:mp.brown@ziggycom.net

Comments:
I am a graduate student in Communication Disorders at Murray State University. For my practicum, I will be working with a child who has CHARGE Syndrome. I am interested in learning more about the condition.

Sheryl Doolittle - 08/25/99 04:59:37
My Email:sdoolit272@aol.com

Comments:
I am a mom of a 13 year old daughter with CHARGE. When she was diagnosed, she was the 1st known case in Iowa. There was limited information and we have just taken day by day and learned about her as things have come up. I am amazed at what is out there ow. Thank you for the website and the information!

Shery harris - 08/23/99 00:42:16
My Email:mharris@optidynamic.com

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Brandi Walker - 08/22/99 20:42:06
My Email:bweezie@hotmail.com

Comments:
Hi, I have a niece who lives with me who has CHARGE Syndrome,She is a sweet little girl of which I love very much!

Louise Claney - 08/19/99 04:00:22
My URL:http://dclaney@bellsouth.net

Comments:
Good information. I am an administrator at an elementary school and we have just received our first child with CHARGE Syndrome. Lots of good links and info!! Than

Jasmin - 08/19/99 01:58:23
My Email:jazz_182@hotmail.com

Comments:
Congratulations on a great site! I'm a 3rd year Education (ECE and Primary) student at the Royal Melbourne Institute of Technology in Melbourne Australia. I am currently conducting a case study for a subject called Child Development - Working with child en with varied develoment. My subject for the case study is my 4 year old cousin whom has been diagnosed with having the "tail-end" of CHARGE Syndrome. She suffers from facial palsy, hearing impairment and has recently had a partial choanal atresia oper ted on. Unfortunately, I have found it hard to find information on CHARGE Syndrome, so if you know of any valuable Websites or texts, could you please email me on the above address. Thanks Jasmin

jackie morgan - 08/13/99 20:25:18
My Email:sam@wildcat12.freeserve.co.uk

Comments:
I found this website by mistake, but having a child with CHARGE syndrome, I have found it very educational and pleased there are families who know all the problems these children have.

Mary Shultz - 08/09/99 00:17:31
My Email:marashu@aol.com

Comments:
What a great sight, I've e-mailed it to several of our family members so they can keep up to date on all the latest info. Thanks for posting Lauren's picture.

- 08/02/99 13:51:23

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Heidi Aulenbach - 08/02/99 03:27:38
My Email:ha120@gateway.net

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I am a deaf-blind social work student and it is a great place to pick up info about CHARGE. Sure I look forward to coming back to this website the next time. Heidi with a smile!

- 07/31/99 02:24:42

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Susan Thornton - 07/29/99 23:10:43
My Email:skarloey@greenwood.net

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I'm an Occupational Therapist with a CHARGE child now in my care. I'm looking for treatment options for this child. I will follow your links but if you know of anything please contact me. Thanks!

- 07/19/99 22:45:31

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Naoko Kondo - 07/14/99 04:11:36
My Email:fumfum@plum.ocn.ne.jp

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Thank you for your heartful page. I have a daughter with CHARGE.She is 10months. I cannot find Home Pages about CHARGE in Japan.,

Ned & Carolyn Breeden - 07/14/99 01:43:38
My Email:ewbcac@aol.com

Comments:
Your Web Site is helpful to may people. We are just getting on line, finally, and will be at the CHARGE conference in Houston. Our 3rd one! Our daughter Alice is 4-1/2. We are presently searching for information on successful behavior management technique , therapies and effective medications for attention problems and excessive activity. Once you get one problem fixed, there's always another waiting in the sidelines. Look forward to talking with everybody in Houston.

Anne McNeil - 07/09/99 01:33:28
My Email:Annemcneil@excite.com

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Persimmon J. Smith - 07/08/99 18:13:46
My Email:pjsmith@sirius.com

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Keep up the great work!

SCOTT AND VIRGINIA NELSON - 07/06/99 23:46:24

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Tina Pipher - 07/03/99 00:15:05
My Email:tinapipher@webtv.net

Comments:
Hi! I am an occupational therapist who recently evaluated a child with this diagnosis and am looking for information. Your site was helpful and I hope to find more out in the near future. Do you know other children who have received sensory integration t erapy, and if so has it benefitted them? Thanks...

Martha Johnson - 06/30/99 01:38:19
My Email:lmj@voyager.net

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I work as a teacher's aide and a special ed bus driver and I have a student with CHARGE syndrome. I am interested in finding out all I can about this syndrome

Amy Poteat - 06/24/99 19:12:03
My Email:apoteat@conterra.com

Comments:
Thanks for a very informative page! I am a future speech-language pathologist and am working with an individual with CHARGE syndrome. Your page was a wonderful learning aide!

Sherry Harris - 06/24/99 03:29:15
My Email:mharris@optidynamic.com

Comments:
I never new this was here .I thing it is great

Susie Soriano - 06/19/99 04:18:49
My Email:ccityc@texas.net

Comments:
I just got a computer and am now able to look this up. My son Alex, who will be 4 yrs old 7-24-99 has CHARGE. We won't be able to attend the conference in Houston next month because I'm due 7-10-99. So far, my Dr says everything looks good. I'm a litt e nervous but I'm sure everything will be ok. Thanks for having this web.

P. Lovejoy - 06/16/99 03:18:58
My URL:http://penguin66@juno.com
My Email:penguin66@juno.com

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Am beginning to care for 2yr old male child with this diagnosis. Just looking for genetic causes and other info.

Rachelle Cote - 06/12/99 22:16:45
My Email:babe.sly.4@sympatico.ca

Comments:
I wrote down the wrong e-mail address when I first signed your guestbook. Sorry!

Rachelle Cote - 06/11/99 03:40:26
My Email:babe.sly.4

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Jo-Ann Laframboise - 06/07/99 17:58:56

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Olle Johansson - 06/06/99 17:18:07
My Email:olle.siv@telia.com

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Olle Johansson - 06/06/99 17:17:43
My Email:olle.siv@telia.com

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