Christopher Ronald Faller May 7, 1990 - March 24, 1998 ~ with severe restrictive cardiomyopathy and secondary pulmonary hypertension. But, other than that, Christopher seemed healthy and just kept getting happier and happier with life. Our beautiful blond-haired, brown-eyed boy lifted his head, rolled over, crawled, walked and talked just like any other child. We decided to put off the transplant as long as he was doing okay. He was definitely our miracle child. He refused to give in to the heart disease. He was the joy of our lives. But you would never have known he was sick just looking at him or talking with him. how much energy a normal 7-year-old can have. By Christmas, he was running up and down the stairs with his cousins and making plans for the future, the first time he had done either in his entire short life. We thought now, finally, he'd be able to lead a normal life. sent us home with the booklet they give to all heart transplant patients' parents. On page 19 of this booklet is a three-paragraph description of the horrible disease that killed our son: it is called post-transplant lymphoproliferative disease, or PTLD. The booklet says it "occurs in only a small number of transplant recipients", and the booklet doesn't give a death rate. PTLD is triggered by Epstein-Barr Virus, a common virus in humans that causes mononucleosis. In some transplant patients, such as poor Christopher, the virus can cause tumors to grow in different organs of the body. exposed to it, so he didn't have any pre-existing antibodies with which to fight the virus. By January 19, he was back in Children's Hospital for treatment of his PTLD. Christopher was breathing too fast -- his heart biopsy showed that he was rejecting the donor heart. He had to take steroids if he was to fight off both the rejection and the viral disease. The doctors decided to do a lung biopsy to determine if it was truly PTLD in his lungs, but something went wrong with the procedure. On February 3rd, they lost Christopher's pulse and his two hearts then stopped beating -- but he was resuscitated and seemed to be okay. kill the large PTLD tumors growing in his chest, and he seemed to be getting better. Then one night, in a panic, he told my husband he couldn't breathe. put back on the ventilator. But I could tell he was struggling for air and had to persuade him that he needed help with his breathing. I thought I was saving him. last clear words that we ever heard him say. Because the breathing tube made talking impossible, and he had to be heavily sedated so he wouldn't fight the tube. fought back again but ended up on a heart/lung machine. And then, they started more chemotherapy, along with a fungal infection, kidney failure and dialysis. His last CT Scan showed that his lungs were solid with virus-induced tumors. falling silent at 12:03 a.m. To his intense relief, my husband was by his side at that very moment. He was afraid that Christopher's spirit would come out of his body and look around and ask "Where's my Daddy?" that I was very proud of him and that I loved him very much, and I wanted him to come home and play with his Legos. St. Sebastian Church. His second-grade classmates and student council members attended and the children's choir sang. After the mass, we went outside to find about 200 students lined up along the driveway, forming a kind of honor guard. It was absolutely beautiful and incredibly quiet. What a loving tribute to our special little Christopher! for my courageous little boy: The impact of a life cut so short should be shared with all So we can help those left behind heal their broken hearts Time will be what is needed now -- to remember Christopher -- As a son, brother, grandson, nephew, cousin, student, friend Christopher was a special someone to each and every one of us His memory will be with us for always Each one of us has been touched in someway by Christopher His rosy cheeks that held the laughter of a happy child His courage as a fighter Or his hidden strength for someone so young A life taken from us much too soon When we remember Christopher these thoughts come to mind We should be thankful for the time that Christopher blessed our lives And know he is at peace now.... And forever in our thoughts and in our hearts Christopher's funeral mass. I couldn't find any more recent photos to include just yet... please either click on the picture above or the link button below. Thanksgiving Angel Gathering YOUR SUCH AN ANGEL TO TAKE CARE OF EVERYONES THINGS LIKE YOU DO... AND I HAVE SOMETHING FOR YOU SWEETHEART...LOVE YOU SWEETIE, LOVE TERRI" from my dear friend, Joyce. are both gifts from my sweet friend, Gennie. love and light Susie I hope the rest of your day is peaceful and full of love. LOVE YOU MY FRIEND Sue-Anne/LEE From Lee For Mom A little gift for Mother's Day. Wishing you a peaceful day. Love and Hugs, Lynn, Mom to Ken. Love and Light, Susie Jason's Home Page As we know how hard this day is for us. Love and hugs. Love you, Carol, mom to My Angel Michael lots of love, Judi, Andrew's Mom Andrew My Son Karen Lyn Jenkins, Mother of An Angel with Pink Wings Geoffrey P. Edwards Love and hugs! to All! Dustin ~ Always and Forever See Your Smile 2009 I know Easter is definitely not the best for any of you, but I do want to send you my Easter gift. I will be thinking very much of all of you. GOD BLESS MARIA MUCH LOVE Sue-Anne/LEE you would like me to help you to create one, please visit this page ~ Memorial Pages By Christopher's Mommy of Christopher Faller on November 9, 2000. Last updated May 12, 2009 by clicking on either of the buttons below... by clicking on the button below... Angel Hugs Postcards making the background set and framing Christopher's pictures and just all the graphics you made for this page....... I sure couldn't have done anything so nice without all your wonderful help!!!!!! Muchas gracias, forever and ever!!! on Christopher's main picture too! in his Guestbook below. Thank you! |