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ESSENTIAL TREMORS |
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I have ETs which stands for essential tremors. What is ET you asked ??? Well I am going to tell you. Et is a neurological disorder that causes your hands, head, voice,legs or trunk to shake. The tremors usually occur when you are doing some kind of action such as eating (boy is this fun trying to eat peas or soup) drinking (I usually use both hands to drink so maybe I won't spill it all over) or writing ( which is almost imposible for me now). Ets can be very disabling at times and although it can be life altering peoples life expectancy is the same as anyone without them.
You can get Et any time of your life however it usually starts to show in about the 40s. I have a grand daughter that was born with them so you can have them from birth. I noticed mine at about 40. They start out very slowly and sometimes never get any worse however they do as mine have.
WHO GETS ET... Some doctors believe that tremors do not run in families but in my case I am sure they do as I have a brother with them, a sister and as I say my grand daughter was born with them. I have a niece with them and also my father had them.
There is no known cure for them however there are several medicines that help some.
That is a little about ets and at the bottom of my page I will post some of my favorite sites to research them. There are 10 millon people with ETs but very little research being done on them. What a shame as they are no picnic take it from me. |
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A Little about my tremors |
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My tremors are mostly in my hands. I did have the internal tremors which is a feeling like you have jello in your insides..I think they are the worse as they are very uncomfortable. I also sometimes get it in my voice however the meds I take do a pretty good job of taking care of that. If I hold my hands out you may not see them shake but as soon as I try to do something it is very noticable. Its almost like you brain telling your hand that she is trying to eat give her a hard time. I do feel lucky as some of my friends with ets have them so much worse but even though mine could be worse they are not fun. I have given up doing my crafts and many of the other things I liked doing with my hands. |
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This is just a few of many sites that I have found to be very helpful |
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http://brain.hastypastry.net/forums/ This is the site called Brain Talk. Go all the way down until you come to Essential tremors. It has a lot of information
http://www.wemove.org/ Go down to Essential tremors and click |
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Mayo Clinic Essential Tremors |
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Neurology Channel |
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This is an interesting article |
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This is a story written by my friend Janice... yes same name different person. Please take time to read it. I am lucky I didn't grow up with tremors but I believe this is what it would have been like |
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Jan's story was used with permission. Thank you Jan |
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WHY I AM DIFFERENT |
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