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Preventing a Lupus Flare
From Lupus : A Patients Care Guide for Nurses and Other Health Professionals
National Institute of Arthritis and Musculoskeletal and Skin Diseases/National Institutes of Health


Your doctor has put together a treatment plan that is designed specifically for you and your lupus.  This probably includes physical and emotional rest, aggressive treatment of infections, good nutrition, and avoidance of direct sunlight and other sources of ultraviolet light.  Your doctor may have also prescribed medications to control disease symtoms and other health problems that you might have.  One of the most important ways you can help yourself is to understand your treatment plan and the things you need to do to keep your disease under control.

Sometimes, despite the treatment plan and your efforts, you may experience a lupus flare.  A flare is a worsening of symptoms that signals increased disease activity.  A variety of factors can cause a flare, and you should contact your doctor immediately of you suspect a flare is developing.  The doctor will evaluate your condition and take steps to control the seriousness of the flare.  He of she will also revaluate your overall treatment plan and make any needed changes.

Warning Signs of a Flare

   Increased fatigue

   A new or higher fever

   Increased pain

   Development or worsening of a rash

   Upset stomach

   Headache or dizziness

   Development of symptoms you haven't had before

What Triggers a Flare?

A flare can be triggered by one factor or a combination of factors.  The most common are:

   overwork or not enough rest;

   stress or an emotional crisis;
 
   exposure to sunlight or other sources of ultraviolet light;

   infection;

   injuries or surgery;

   pregnancy or the time right after the baby's birth (the postpartum period);

   sudden stopping of medications for lupus;

   sensitivities of allergies to items that you put on your skin, such as hair dye, hair permanent    solution, makeup, and skin creams;

   certain prescription drugs;

   over-the-counter medications, such as cough syrup or laxatives;

   immunizations

Caring For Yourself

Learn to recognize the warning signals of a flare and tell your doctor about them.

Maintain you physical health.  Be sure to visit your doctor regularly, even if you are feeling well.  Schedule regular dental, eye and gynecological exams.

Get enough sleep and rest.  Be flexiable with your schedule of daily activities.

Try to limit your stress.  Because this may be hard to do at times, consider developing a plan for dealing with potentially stressful situations.  Develop a support system that includes family. friends, medical or nursing professionals, community organizations, and support groups.  Remember, it helps to talk to someone when you're feeling stressed.

Participate in a well-planned exercise program to help you maintain physical fitness and reduce stress.

Eat a healthy diet.

Limit your exposure to the sun and other sources of ultraviolet light, such as fluorescent or halogen lights.

Tell your doctor right away about any injury, illness, or infection or if you do not feel well in any way.

Delay elective surgery (including dental surgery and teeth pulling) until your lupus is under control or in remission.

Lupus may cause problems for a pregnant woman and her baby.  As a result, women with lupus should carefully plan any pregnancy.  Do not stop using your method of birth control until you have discussed the possibilitiy of pregnancy with your doctor and he or she has determined that you are healthy enough to become pregnant.

Talk with your doctor before you stop taking any prescribed medications.

Check with your doctor or nurse before talking any over-the-counter medications.

Be careful when trying any over-the-counter preparations used on your skin or scalp.  First, determine whether you have a senitivity or an allergy to it.  Put a small amount of the preparation on the inside of your forearm or on the back of your ear.  If any redness, rash, raised areas, itching, or pain develops, do not use the preparation.

Be aware that certain prescription drugs may trigger a flare.  Tell any doctor, nurse, or health care professional you visit that you have lupus.  Also tell your lupus doctor or nurse of any new medications that have been prescribed for you.

Be sure to check with your lupus doctor before receiving an immunization.  Routine immunizations, including those for the flu and pneumonia, are an important part of maintianing your health, and you should get them if your doctor approves.