Gastroschisis is a very rare but very dangerous disorder in which a baby is born with her intestines outside of her abdomen.  This is a defect that happens in the early stages of pregnancy.  There are no known preventions.  This birth defect happens in 1 out of 20,000 - 30,000 babies.  Approximately 50-60% of babies with Gastroschisis are born premature.  The survival rate of a Gastroschisis baby is 70-90%. 

These statistics are very up to date.  When Jessica was born in 1982, she was not expected to live.  Gastroschisis was not a well known birth defect at that time.  She was about 2 1/2 months premature and she weighed just over 3 pounds.  She had to endure 3 surgeries before she was 6 months old and didn't get to go home until she was about 9 months old. 
For more information, please click on the sites listed below.
Information & Links
Texas Pediatric Surgical Associates

Medline Plus

Web MD Health

drkoop.com

Seth's Story
Christie & Michael's Web Site
(Jessica's big sister & brother-in-law)

In Memory of Justin Thomas Colley
(Jessica's big brother who died of SIDS)
[Home] [Baby Book] [Webrings] [Awards]
The following are email support groups for Gastroschisis and other abdominal defects.  All three groups a made up of wonderful people who are going through or have gone through the affects of Gastroschsis.  These groups are a great source of information and support.  To visit the group or join, click on the name of the group.

'No Belly Button' Website
New Website

'Gastroschisis' Group


'Gastroschisis Support' Group
Email Support Groups
Family Links
To view archived GuestBook entries, click here.