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Syndromes
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SYNDROMES |
A plea for signing in my guest book. I am trying to aim my pages and their content for my audience. You don't need to write much, but a small amount of information would be helpful. I am more than glad to exchange e-mail with my visitors also.
GENERAL INFO
Selective Mutism GroupGood information on this unusual disability.
Tourettes SyndromeDiagnostice criteria for Tic disorders- excellent info.
Division of Mental Retardation and Developmental DisabilitiesInforms of Certification Principles for guardianship/conservatorship: "Making It Work To Self Determination"
Waisman Center's List of Web Sites Related to Cognitive and Developmental Disabilities *
Medical Stuff Links to medical problems such as cerebral palsy, asthma, etc.
Chromosome 18 Registry & Research Society * Purpose to locate persons with chromosome 18 anomalies; educate families; encourage research
March of Dimes: Birth Defects Site has good information.
Developmental Coordination Disorder
DOWN SYNDROME
Go to for a new Down syndrome page
ANGELMAN SYNDROME
Angelman Syndrome A rare syndrome but one to be aware of.
GUILLAIN BARRE SYNDROME
Guillain Barre Syndrome Foundation International GBS can leave a person with long term disabilities.
TUBEROUS SCLEROSIS
Tuberous Sclerosis Alliance A great site on this unusual complex. I have placed on this syndrome page in order for people to learn of it. I have had students with this complex and it is different with each one.
AUTISM
Autism Society of America Information, support, advocacy, research all about autism. Excellent site and you can sign up for free updates.
Jypsy's links - Hundreds of Autism, Aspergers, PDD, etc."More Autism related links than you shake a stick at!!!" 1st and 2nd hand accounts of life on the spectrum and their parents.
Autism and Pervasive Developmental DisorderTrackStar - Collection of sites with good information
Autism and Developmental Disorders: A Developmental ApproachA site by a group that works with autistic children.
NICHY Fact Sheet: Autism and Pervasive Developmental DisorderKnow that this site will disappear soon as NICHY changes pages often. I would copy it if it has what you want or need. definitions, characteristics and educational implications are included.
Asperger Syndrome (A Guide for Educators and Parents)Excellent information here.
Autism/PDD Resources Network: Main PageSite states its purpose is to guide visitor to key issues associated with Autism spectrum disorders. Some great invaluable info here.
Asperger Syndrome (A Guide for Educators and Parents)Excellent information here.
Autism and Pervasive Developmental DisorderExcellent article, don't know how long it will be up. You can email it to a friend.
Autism/PDD Resources Network: Main PageSite states its purpose is to guide visitor to key issues associated with Autism spectrum disorders. Some great invaluable info here.
TOURETTE SYNDROME
Tourette Syndrome "Plus"Some excellent information on Tourette syndrome and also on Obsessive-Compulsive, Attention deficit disorder, Rage attacks, Mood disorders, Autism/Asperger's Syndrome, Advocacy, Conferences and more.
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RUBELLA SYNDROME
Rubella Syndrome Has information on this preventable syndrome
WILLIAMS SYNDROME
Williams Syndrome new research *
Comprehensive Williams Syndrome home page
Williams Syndrome Information about the Center for the Study of Autism.
Different Minds An article about Williams syndrome by Robert Finn
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TURNER'S SYNDROME
COHEN SYNDROME
Health Library - Cohen Syndrome More information on Cohen Syndrome. This site is an excellent health library with much more than just Cohen Syndrome information.
Cohen Syndrome Support Group (Specific Eye Conditions Web Site) SPECS Gives excellent general information and specific information on eye conditions.
Cohen syndrome These sites get moved around a lot, but this is from the U.S. National Library of Medicine. Information on Cohen Syndrome is excellent.
The CaF Directory - COHEN SYNDROME
Cohen Syndrome- features listed
Cohen Syndrome Details about this rare syndrome and support groups.
Beasley-Cohen-Ehlers-Danlos Syndrome with mental retardation
SMITH-MAGENIS SYNDROME
I am currently unable to find a good site for this syndrome.
RETT SYNDROME
Rett Syndrome Autistic like behaviors, but not the same thing. Very brief discussion. < p>Our Rett Syndrome Page Contents: About Rett Syndrome, Getting support, Recommended reading & videos, Parent tips, other links and more.
Rett Syndrome Association UKLinks, and information.
Rett SyndromeDescription of the syndrome, links and books.
Rett SyndromeContents: Meet some of us, What is Rett Syndrome, Research, Information on the causing gene, Communication links, Education, Threatments & therapies, RettNet, Support & resources, Links, Happenings, and more.
Rett SyndromeHas a link, Our Story with Rett Syndrome, well worth reading.
Rett Syndrome Resourcesjust two links so far.
Our Rett Syndrome PageContents: About Rett Syndrome, Getting support, Recommended reading & videos, Parent tips, other links and more.
A discussion forum Relating to Rett Syndrome.
Information on Rett Syndrome from OMIM
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FRAGILE X SYNDROME
FRAXA research foundation home page Supporting research aimed at treatment for fragile x syndrome
Fragile X Syndrome From the Center for the Study of Autism.
A discussion forum Relating to Fragile X.
Information on Fragile X from the OMIM
Fragile x Syndrome Who to contact - where to go to chat with others; learn more about it - web sites
Fragile X Syndrome Policy statement: American College of Medical Genetics
Fragile X Listserv Latest medical information (from FRAXA)
FRAGILE X Pediatric- very medical
FETAL ALCOHOL SYNDROME
Fetal Alcohol Syndrome Information on ordering posters and brochures.
Creative Consultants, Inc. "...specializes in the education of children of children who were prenatally exposed to alcohol and other teretogenic drugs, especially children affected by Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Effects(FAE)" Links to:pregnancy; overview of FAS/FAE
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LANDAU-KLEFFNER SYNDROME
Landau-Kleffner Syndrome From the Center for the Study of Autism.
Information on Landau-Kleffner Syndrome from the OMIM
Landau Kleffner Syndrome Menu * Has list of links for information- Some good some not.
Landau Kleffner Syndrome/Educational Programs * Has testimonials from parents. Appears to be help for this syndrome.
PRADER-WILLI SYNDROME
Prader-Willi Syndrome association Homepage.
OMIM Information on Prader-Willi Syndrome
Prader-Willi Foundation on the Internet Provides links to up to date information and sites about Prader-Willi syndrome.
Links for Prader-Willi families and advocates Information; family support; information/disabilities; advocacy; and education
Prader-Willi Syndrome Association
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CRI DU CHAT SYNDROME
PKU
Mid-Atlantic Connection for PKU and Allied Disorders
HYDROCEPHALUS
A discussion forum relating to Hydrocephalus.
SOTO SYNDROME
NINDS Soto's Syndrome Information Page
COACH SYNDROME
American Roentgen Ray Society Discussion of Coach Syndrome.
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